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I have a concern that I don’t ever remember doing a swab test so that I can be matched up with anyone. I really want to make sure that they truly have all my information as we know people who could use a donor and I would like to help it at all possible. I have tried to rejoin and get a kit, but the site told me I was already a member and that I couldn’t get one. Is there a number where I can call to verify that they indeed have my sample on record?
I noticed Fibromyalgia is listed as a dis qualifier. Does anyone know why. If you are not on medication and it does not interfere with daily life? Controlled arthritis is allowed so I am a bit perplexed. Any information on this would be great.
Thank you.
This is a good idea to have a post about Guidelines for Participation.
I am surprised, that I am still receiving your email, since I can not donate do to age.
Hi Fred,
There are many other ways you can still get involved! Watch for opportunities in our upcoming enewsletters, and you can also visit us at http://www.BeTheMatch.org/getinvolved
Thanks!
I have been on the registry for a couple of years. I received notification I was a possible match for a patient. I completed the next step by completing the medical questionnaire. I received a phone call that everything was a go for further steps. I didn’t hear anything for several weeks. Today I received an email stating I was a match for the patient but the patient is not ready for a transplant at this. Does this generally happen if the patient is too ill to participate in a transplant or can it be due to financial reasons? I just want to make sure in my mind the reasons for not being ready and that I am doing everything I can to help the patient.
oops..email stated patient was not ready at this time…
Hi Susan, great question! There can be a variety of reason that a patient might not be ready for transplant due to their treatment status, health status, and more! If you have specific questions- you can feel free to reach out to your donor center and they can help. Or please give us a call at 1-800-MARROW2 and we can answer any further questions. Thank you for your commitment!
oops..email stated patient not ready at this time..I left the word ‘time’ off.
What kind of organization are you? Since those age 45-60 can only participate BY MAIL and not in person, I suppose you just dispose of the swab and cash the $100 donation! Why not include PROOF of your claim about the age on your site? It would make you a credible organization because you sure sound like a fishy one after reading your requirements!
Diane,
I think if you google “be the match” you’ll see they are well respected and doing a great job.