But within her first year of life, Kate developed a fever and further tests showed that her white blood cell and platelet counts were unusual. Doctors ran tests for several months before identifying Kate’s mystery diagnosis – a rare, genetic type of bone marrow failure called Congenital Amegakaryocytic Thrombocytopenia (CAMT). A marrow transplant would be the only cure, but no one in Kate’s family was a matching donor. Thankfully, Kate was able to find a match on the Be The Match Registry in just a few months and doctors began to prepare her for transplant.
While Kate was fighting for her life in the hospital, Lindsey discovered that she was unexpectedly pregnant again, despite her plans not to have any more children. She and Alex prayed that this child would not have the same difficult disease as Kate, but genetic testing came back positive for CAMT. Shortly after the birth of their new son, Will, the search for his matching donor began.
Throughout their journey, Lindsey is staying positive for her children. Kate received her transplant and is nearing her one-year post-transplant mark with boundless energy and a big personality. She loves to dance any chance she gets and recently celebrated her second birthday with family and friends. A matching donor for Will has been found on the Be The Match Registry and is waiting until Will is ready to receive his transplant.
In celebration of their children and to encourage others to join the Be The Match Registry as committed marrow donors, Lindsey and Alex are participating in the 2012 Houston Be The One Run with their team, “The Royal Runners”.
Register for Be The One Run today and show patients like Kate and Will that you care.