Every four minutes someone is diagnosed with a blood cancer like leukemia or lymphoma. Seventy percent of patients do not have a donor in their family. They depend on Be The Match to find their life-saving match.
So, thanks to you—our community of registry members, donors, expectant parents who donate their babies’ umbilical cord blood, volunteers, health care professionals, researchers and financial supporters—more patients every year are receiving the life-saving marrow or cord blood transplant they need.
I hear the stories of blood cancer patients every day, and I can see the impact of our work. Together, we are saving lives. So I am grateful for my role as part of this trusted, global organization as we lead scientific advances to create better outcomes for all patients. We continue to improve patient access to transplant by leading efforts that remove barriers to treatment, and to champion initiatives that strengthen the abilities of our network of hospitals and international registries to meet the growing need.
Each and every one of us may hold the cure for a blood cancer patient. I urge to you register, volunteer, spread the word and do what you can to help those in need.
All the best,
Jeffrey W. Chell, M.D., CEO, Be The Match
The following is a reflection written by Kim:
“After my two year battle with breast cancer, and now a new devastating diagnosis of leukemia, the challenges of fighting yet again seemed insurmountable. Still exhausted from all that I had been through I was done being brave, done being strong I just wanted to be. It was scary finding out that a bone marrow transplant was my only hope for a cure. After a long and tedious search for a donor we finally found what we were looking for, a young man from Germany was a perfect match for me.
So, on July 27, 2012, my life was changed forever. Through the miracle of a bone marrow transplant I was given life in a bag from a perfect stranger. This young man gave me a second chance to live without knowing me, he gave my girls a mom without thinking twice, he gave us hope when there was very little to speak of, and all without a face. A perfect stranger.
The transplant proceeded, but not without bringing me to my lowest point of darkness. Weak and vulnerable, I couldn’t stand up, I could barely speak or even stay awake. My recovery seemed but a distant dream. Confined to the house for months after spending 88 days in the hospital took a cruel toll on me as I struggled to even look in the mirror, wondering if I’d ever be the same again or have the energy to do the things I love. My life was seemingly on pause while the whole world was going on without me. Yet, as grueling recovery gave way to the slightest signs of renewal, I felt strangely empowered knowing I was beating this thing. And I couldn’t help but think about all the blessings in my life, each one worth fighting for.
Though each day seemed endless, I was warmed by the joyful sound of two little girls happy to have their mommy home and the unwavering love of an amazing, caring husband. That’s why I’m here today, that’s why I’m alive. It wasn’t medicine, or doctors, or treatments.
It was LOVE that got me here. Love from my family, love from my friends, love from a perfect stranger.
Who could possibly be the same after an experience like this? The dark times so incredibly bleak, the emotions relentless. Yet, with all of this comes an extraordinary sense of clarity. Deeply humbled by this journey and proud of what I’ve overcome, I am content with whom I’ve become and am forever grateful for the unconditional love that surrounds me.
I used to pray that I would one day forget this awful journey, never again looking back on these bitter years of illness. But I don’t pray that anymore. Through it all I’ve gained a new appreciation for life that is unexplainable and for that I will be forever thankful.”
Talley has also been an ardent financial supporter of Be The Match. During the month of September, The Andy Talley Bone Marrow Foundation will match gifts to Be The Match dollar-for-dollar, up to $100,000. Thanks to his generous support, your dollars will have DOUBLE the life-saving impact.
Community Health Charities. Be The Match is a member of Community Health Charities the largest workplace giving collaborative with a focus on health issues. If Community Health Charities is a part of your workplace giving program, you can direct donations to Be The Match. Our designated Combined Federal Campaign code is #10579.
United Way. If our information is not listed through your local United Way campaigns, you may write in Be The Match on your pledge card, along with this address: 3001 Broadway Street NE., Minneapolis, MN 55413
Matching Gifts. Many employers will match your personal donation. Check with your company for more information on matching gift programs. Employer matching gifts may also be available to you if you are the spouse of an employee or a retired employee.
If you have any questions about workplace giving, please contact Angie Dahl at email@example.com.
STORY UPDATE – September 17, 2014:
Tamino’s search for a marrow donor has caught the attention of two other young fathers who understand exactly what he is going through. On Friday, Sept. 19, ABC’s Good Morning America will broadcast a special first-time meeting of a Staten Island man who beat lymphoma and the Dallas marrow donor who helped him do it. These two young dads heard about Tamino’s search and are asking others to join the marrow registry in Tamino’s honor.
“No child should grow up without a father, not if we can help it,” said Justin Jenkins the Dallas dad who donated marrow so a Staten Island father could watch his 4-year-old grow up.
“Let’s find Tamino a marrow donor. Help teach his young son, Matteo that the world may be big, but it’s full of people willing to stop what they’re doing for a moment to help a little boy in Queens who needs his daddy.” Join the registry online at join.bethematch.org/tamino
ORIGINAL STORY – September 12, 2014:
In June 2013, Queens, NY residents Tamino Castro and his wife, Krishna welcomed their first child into the world – a baby boy they named Matteo.
Their joy was short-lived. Less than a week after Matteo’s birth, an unexpected medical diagnosis turned their world upside down.
Tamino experienced an unusual and severe reaction to a vaccination, prompting his doctor to recommend additional testing. After several nerve-wracking days of blood work and bone marrow biopsies, the new parents received a life-changing diagnosis: the young father was suffering from severe aplastic anemia.
Aplastic anemia is a disease in which the bone marrow does not make enough blood cells, limiting the body’s ability to carry oxygen, fight infection and control bleeding. Tamino’s best chance for a cure is a marrow transplant, so his doctors were quick to consider a transplant from one of his two siblings living in Brazil.
Sadly, Tamino’s siblings were only a match for each other – not for him. Like 70 percent of marrow transplant patients, Tamino turned to the Be The Match Registry®, the world’s largest and most diverse listing of potential marrow donors, in hopes of finding an unrelated donor.
While they continue to search for a perfect match, Tamino and Krishna are encouraging New York residents to participate in the upcoming Be The Match® Walk+Run. The event takes place on Saturday, September 20, starting at South Street Seaport Fulton and Front Street.
The 5K, 1K and Tot Trot raises funds to support marrow transplant research, help patients with uninsured treatment costs, and add more potential marrow donors to the Be The Match Registry. The better the turnout, the more hope for a cure for patients like Tamino.
You can join the Be The Match marrow registry online in honor of Tamino and other blood disease patients in need of a marrow donor, visit join.bethematch.org/tamino.
You’ll get a cheek swab kit mailed to your home. Follow the simple instructions, swab your cheek and mail the swabs back to Be The Match. It’s that easy to join and see if you’re someone’s cure.
With student-led chapters at over 70 colleges and universities nationwide, Be The Match On Campus has the people, passion and power to make huge strides in the fight to cure patients with life-threatening diseases in need of bone marrow transplants.
Be The Match On Campus goals include increasing awareness of the need for bone marrow donors, building the registry, and fundraising for Be The Match. The 2013-2014 academic year saw success in all these areas. Together, the chapters raised nearly $60,000 and added 11,178 new members to the Be The Match Registry.
With another academic year upon us, Be The Match On Campus is geared up and ready to go. In July, committed and passionate students from each chapter attended the 2nd Annual leadership summit in Bloomington, Minnesota, where they put the wheels in motion for their biggest year yet. Goals for the 2014-2015 academic year include raising $150,000 between all of Be The Match On Campus’s chapters, and adding 15,000 new members to the registry.
To learn more about Be The Match On Campus and to track our progress toward these goals, click here.
After watching a Be The Match® video about marrow donation, Paul wondered: Could he do it?
Paul is of mixed race ethnicity, and he discovered there was an urgent need for donors like him. He visited BeTheMatch.org to learn more and was convinced he could help, so he requested a cheek swab kit.
When the kit arrived in the mail, Paul swabbed his check and sent it back, indicating his willingness to join the Be The Match Registry® and donate if needed. He and his wife talked about the registry and speculated on his chances of being a match. “I remember hoping I would be called. If I could help change a life or even save a life, then what’s a needle?” says Paul.
And then, less than a year later, Paul’s wish came true: he was identified as a possible match for an unidentified patient.
Excited about the prospect of helping someone, Paul went in for blood work – and the match was confirmed. His next step was a full physical to ensure that he was healthy enough to be a donor. Throughout the process, Be The Match provided Paul and his wife with ongoing support and resources, including a dedicated donor coordinator.
“It was really wonderful,” says Paul. “The nurse I worked with became my personal contact and I could call her any time of day or night. We sat around the table and talked about what donation would mean for me and for my wife.” The nurse answered their questions and alleviated their concerns.
“One of the things that I really like about Be The Match is that they are so concerned about you as a donor,” says Paul. “They make sure you’re safe at every step and give you every opportunity to change your mind.”
But Paul didn’t change his mind. On the day of the actual donation, when he learned that he would be donating to a 17-year-old boy with leukemia, Paul broke down and cried.
“It touched me so dramatically,” he says. “I thought about how this young man was just beginning his life, and that I was about to do something that could give him time he didn’t have now.”
After the donation, Paul had a stream of visitors coming to express their admiration and congratulations. He told everyone it was an honor and that he’d do it again in a heartbeat. But the best thing he heard was that his recipient’s transplant went well.
Paul is now an ardent supporter of Be The Match. “All it costs you is a little time and a little soreness,” he says. “And you save a life.” After reading about other donors who have given two or three times he says, “It makes me want to donate again. It is the easiest way that we can give life and give hope to someone else.”
As a working mother of two, Tiffany found time to eat right and take care of herself. So when a routine blood test showed a startlingly high platelet count, Tiffany and her family were shocked.
A devastating diagnosis
Visits to specialists and additional testing lead to an official diagnosis in November 2010—myelofibrosis, a cancer that affects the body’s blood-forming tissue.
While the news was devastating, Tiffany decided early on that giving up was not an option. A natural optimist, she recognized that part of her battle with cancer involved mental strength. By staying positive and relying on her faith and family for support, Tiffany was determined to beat the odds. “From the moment I was diagnosed with cancer, in my heart, I always believed I would get better… God doesn’t give you anything you can’t handle,” said Tiffany.
The road to recovery
Soon after her diagnosis, Tiffany’s doctors determined a marrow transplant was her best option for recovery. All four of her biological siblings were tested, but, unfortunately, none of them were a match. After turning to the Be The Match Registry, Tiffany’s doctors quickly located an unrelated marrow donor committed to helping her survive.
Though Tiffany was encouraged, she was worried about the chemotherapy. The nausea she could handle, the weakness she could take, but there was one part of the process she was truly dreading: losing her hair. Tiffany says losing her hair was the most painful part of her entire ordeal. “My hair is a big part of who I am. When I eventually shaved my head,” she said, “I just broke down and cried.”
In the end, it was all worth it. In June of 2011, a year after her diagnosis, Tiffany received her life-saving transplant. She is certain she wouldn’t be alive today if not for the support from her family and friends and the generosity of a selfless stranger—her marrow donor.
Speaking to the man that saved her life
Tiffany knew right away that contacting her donor was something she wanted to do. If the donor center allows and both parties consent, a donor and recipient must still wait one year before they can exchange contact information. After a year of anticipation, Tiffany and her donor finally connected by phone.
While they are hundreds of miles apart, Tiffany and her donor feel deeply united. Her donor explains that Tiffany is now a part of him and his family. The two communicate often during which Tiffany tells her donor, “You are the reason I get up in the morning.”
An extraordinary meeting
“I can’t wait to know the person that saved my life,” Tiffany said. Soon, her wait will be over. On September 27th Tiffany and her family will meet this extraordinary stranger live on stage at our Be The Match Soiree, in Atlanta. They are incredibly excited to say thank you for greatest gift of all—the gift of life.
Anthony first met Ben Cowing at the hospital where Ben was receiving treatment for leukemia. Ben and Anthony have become fast friends—despite Ben’s love for the White Sox. Ben needs a bone marrow transplant, but hasn’t found his marrow match yet. Together, Ben and Anthony have teamed up to spread awareness of Be The Match and the need for more marrow donors.
In partnership with the Chicago Cubs and the Anthony Rizzo Family Foundation, A Piece of the Game will be auctioning a game-used Anthony Rizzo jersey and bat to benefit Be The Match. All proceeds from this auction will be donated through the Anthony Rizzo Family Foundation to Be the Match in honor of Ben Cowing and his family.
Bid now to support Be The Match and patients like Ben!
Learn more about the submission process and judging criteria >
Before you get started, here is what you need to know:
- We’re looking for artwork that best illustrates what Be The Match means to you.
- There will be five age categories. There will be two finalist chosen from each category, with a total of 10 finalists making it to the final voting round.
- Beginning the first week in October, Be The Match will be posting the finalists on our Facebook page where the community will get the opportunity to vote for their favorite pieces!
- You’ll have 48 hours to vote (Facebook “Like”) for the artwork you like the most. The artwork with the most votes (Likes), wins the age category.
- There will be a total of five winners, one from each age category.
- The winning artwork will be featured as Be The Match’s 2014 holiday greeting cards, available for purchase on Shop Be The Match
Interested in getting involved? Please read and agree to the following agreements:
Have questions? Read our Artwork Contest FAQs >
Note: NMDP/Be The Match Employees are NOT eligible to enter.